Thousands have been denied fluids and medication – and in some cases
doctors have not even told their relatives they are about to die, the
report says
Many
of these centred on the Liverpool Care Pathway, a procedure under which
food, fluid and medication was withdrawn from patients in their final
hours – supposedly to reduce suffering.
The
controversial policy was abolished in 2014 after a major review – which
followed a Daily Mail campaign warning that it was being widely abused
as a tick-box exercise.
This
newspaper exposed how some patients were being denied food and fluid
for days leading up to their deaths while others were being written off
when they could have recovered.
NHS
staff have since been issued with new guidelines instructing them to
treat dying patients as individuals and respect their personal needs and
wishes.
Today's
report found that – on the whole – care has vastly improved as a result
and the skills of doctors and nurses have been 'allowed to blossom'.
But
it also highlighted 'unacceptable variation' between hospital trusts –
partly due to a lack of staff, training and general attitude towards the
dying.
The authors examined the records of 9,302 patients who had died at 142 hospital trusts in May 2015.
They
found that for 55 per cent of individuals, there was no evidence they
had been supported to drink in the last 24 hours of their life.
For
66 per cent, there was no documented evidence that they had been helped
to eat or offered a feeding tube. In another 16 per cent, doctors had
slipped a Do Not Resuscitate Order into medical files without discussing
it with that individual nor their relatives. And in 4 per cent of cases
– one in 20 – staff had failed to tell patients' close family or
friends they were nearing the end of their life.
Lay
member of the audit team Tony Bonser, whose son Neil died of cancer
seven years ago, said: 'The two questions everybody wants to know about a
relative is 'are they dying?' and 'how long have they got?'.'
The authors examined the records of 9,302 patients who had died at 142
hospital trusts in May 2015. They found that for 55 per cent of
individuals, there was no evidence they had been supported to drink in
the last 24 hours of their life
Professor Sam Ahmedzai, an
expert in end-of-life care at Sheffield University and lead author of
the report, warned of 'unacceptable variation' between hospitals.
The
number of times that medication was reviewed in last 24 hours varied
from 20 per cent to 100 per cent, depending on where you were. Being
assessed for a need of clinically assisted hydration varied from 10 per
cent to 100 per cent.' But he also pointed out that in the two years
since the Liverpool Care Pathway was abolished, doctors and nurses
responsible for end-of-life care had been 'allowed to blossom'. The
blanket policy may have 'held back' their skills – now they could look
after patients as individuals to accommodate their final wishes.
The
report also found that 19 per cent of patients had not been given pain
relief in their final 24 hours of life while 31 per cent had not had
medication for agitation.
And only 11 per cent of hospitals had specialist end-of-life doctors and nurses available 24 hours a day, seven days a week.
Dr
Adrian Tookman of Marie Curie, a charity which cares for terminal
cancer patients said: 'We can't ignore the fact that the vast majority
of dying people and those close to them, still have limited or no access
to specialist palliative care support when they need it in hospital.
'This
is not right. It is critical that funding is directed towards
recruiting and training doctors and nurses to provide specialist care
now.'
Dr
Ros Taylor MBE, clinical director at the charity Hospice UK, said: 'It
is promising to see there have been some significant improvements in the
care of dying people in hospitals in recent years.
'However, it is clear that pockets of very poor palliative care still persist.'
An
NHS England spokesman said: 'He added: 'There are clear variations in
the support and services received across hospitals and areas where
improvements must continue to be made.
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